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abstract blue image with text Trust and Safety Research Conference

Join us September 29-30 for two days of cross-professional presentations and conversations designed to push forward research on trust and safety.

Hosted at Stanford University’s Frances. C. Arrillaga Alumni Center, the Trust and Safety Research Conference will convene trust and safety practitioners, people in government and civil society, and academics in fields like computer science, sociology, law, and political science to think deeply about trust and safety issues.

Your ticket gives you access to:

  • Two days of talks, panels, workshops, and breakouts
  • Networking opportunities, including happy hours on September 28, 29 and 30th.
  • Breakfast and lunch on September 29 and 30th.

Early bird tickets are $100 for attendees from academia and civil society and $500 for attendees from industry. Ticket prices go up August 1, 2022. Full refunds or substitutions will be honored until August 15, 2022. After August 15, 2022 no refunds will be allowed.

More information is available at: http://www.tsresearchconference.org

For questions, please contact us through internetobservatory@stanford.edu

Frances C. Arrillaga Alumni Center
326 Galvez Street
Stanford, CA 94305

Conferences
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Stanford Department of Health Policy Health Equity Symposium Header

 

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Stanford Medicine's new Department of Health Policy held its inaugural departmental symposium on October 6, convening thought leaders and experts in medicine, law, economics and data science. Speakers discussed innovative policy work and scalable solutions for improving health equity. Panelists addressed how to reduce persistent health disparities from three angles: social determinants of health, technology and innovation, and access and affordability.

Discover the powerful role health policy can serve in ensuring the health of all people, not just a privileged few.

 

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Keynote Speaker: Kirsten Bibbins-Domingo, PhD, MD

Talk Title: Building Equity in the Research Enterprise

Editor in Chief, Journal of the American Medical Association (JAMA) and JAMA Network

Professor of Epidemiology & Biostatistics and Medicine, University of California, San Francisco

 

 

 

 

 

Opening Remarks by Stanford Medicine Dean Lloyd Minor

Terrance Mayes, Associate Dean for Equity and Strategic Initiatives

 

 

Panel 1 — Social Policy: Strategies for Addressing Structural Determinants of Health

 

 

Moderator

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Alyce Adams, Stanford Health Policy
Alyce Adams, Stanford Medicine Innovation Professor, Professor of Epidemiology and Population Health, Professor of Health Policy

Panelists

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Jeremy Goldhaber-Fiebert
Jeremy Goldhaber-Fiebert, Professor of Health Policy

 

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Gilbert Gonzales, Vanderbilt
Gilbert Gonzales, Assistant Professor at the Center for Medicine, Health & Society at Vanderbilt University

 

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Adrienne Sabety, Stanford Health Policy
Adrienne Sabety, Assistant Professor of Health Policy

 

 

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Panel 2 — Technology: Optimizing Innovation for Health Impact and Equity

 

 

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Joshua Salomon of Stanford Health Policy
Moderator: Josh Salomon, Professor of Health Policy, Director of the Prevention Policy Modeling Lab

 

 

Panelists

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Joshua Makower, Stanford
Joshua Makower, Boston Scientific Applied Biomedical Engineering Professor, Director of the Stanford Byers Center for Biodesign

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Grant Miller Stanford Health Policy
Grant Miller, Henry J. Kaiser, Jr. Professor, Professor of Health Policy

 

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Sherri Rose Stanford Health Policy
Sherri Rose, Associate Professor of Health Policy, Co-Director of the Health Policy Data Science Lab

 

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Panel 3 — Access & Affordability: How to Finance and Deliver Health Care Innovations Equitably

 

 

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Michelle Mello
Moderator: Michelle Mello, Professor of Health Policy, Professor of Law

 

Panelists

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Nicole Cooper, UnitedHealth
Nicole Dickelson Cooper, Senior Vice President at UnitedHealth Group 

 

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Stacie B. Dusetzina, Vanderbilt
Stacie Dusetzina, Associate Professor of Health Policy at Vanderbilt University Medical Center

 

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Maria Polyakova Stanford University
Maria Polyakova, Assistant Professor of Health Policy

 

 

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Vindell Washington Verily Life Sciences

Vindell Washington, Chief Clinical Officer of Verily Health Platforms and CEO of Onduo

 

 

#StanfordHealthEquity

WATCH ENTIRE EVENT HERE

Learn More about Stanford Health Policy

Our People, Our Reserch and Our Mission to Improve Health

 

Accreditation

In support of improving patient care, Stanford Medicine is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team. 

Credit Designation 
American Medical Association (AMA) 

Stanford Medicine designates this live activity for a maximum of 4.0 AMA PRA Category 1 CreditsTM.  Physicians should claim only the credit commensurate with the extent of their participation in the activity. 

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McCaw Hall, Arrillaga Alumni Center

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The Supreme Court ruling eliminating the constitutional right to an abortion could also result in women’s personal reproductive health data being used against them, warns Stanford Health Policy’s Michelle Mello.

The Dobbs v. Jackson Women’s Health Organization ruling could, for example, lead to a woman’s health data in clinician emails, electronic medical records, and online period-tracking platforms being used to incriminate her or her health-care providers, Mello said.

“Ultimately, broader information privacy laws are needed to fully protect patients and clinicians and facilities providing abortion services,” writes Mello, a professor of health policy and law in this JAMA Health Forum article with colleague Kayte Spector-Bagdady, a bioethicist from the University of Michigan. “As states splinter on abortion rights after the Dobbs Supreme Court decision, the stakes for providing robust federal protection for reproductive health information have never been higher.”

Eight states banned abortions on the same day the Dobbs ruling came down, and 13 states that had “trigger bans” that, if Roe v. Wade were struck down, would automatically prohibit abortion within 30 days. Other states are considering reactivating pre-Roe abortion bans and legislators in some states intend to introduce new legislation to curb or ban the medical procedure.”

Three Potential Scenarios

The authors note these new abortion restrictions may clash with privacy protections for health information, laying out three scenarios that could impact millions of women. And, they note, “despite popular misconceptions about the breadth of the Privacy Rule of the Health Information Portability and Accountability Act (HIPAA) and other information privacy laws, current federal law provides little protection against these scenarios.”

The first scenario is that a patient’s private health information may be sought in connection with a law-enforcement proceeding or civil lawsuit for obtaining an illegal abortion. HIPAA privacy regulations and Fourth Amendment rights against unreasonable searches and seizures won’t help physicians and hospitals resist such investigative demands, the authors write. And though physician-patient communications are ordinarily considered privileged information, the scope of that privilege varies greatly from state to state. “In many cases medical record information has been successfully used to substantiate a criminal charge,” the authors write.

Ultimately, broader information privacy laws are needed to fully protect patients and clinicians and facilities providing abortion services.
Michelle Mello
Professor of Health Policy, Law

The second privacy concern is the potential use of health-care facility records to incriminate an institution or its clinicians for providing abortion services. Relevant records could include electronic health records, employee emails or paging information and mandatory reports to state agencies. Clinicians may not realize that if they are using an institutional email address or server, their institution likely has direct access to information and communications stored there, which can be used to search for violations. State Freedom of Information Act (FOIA) laws also allow citizens to request public records from employees of government hospitals and clinics.

“Additionally, state mandatory reporting laws for child abuse might be interpreted to cover abortions — particularly if life is defined as beginning at fertilization,” the authors note.

The third scenario is that information generated from a woman’s online activity could be used to show she sought an abortion or helped someone to do so. Many women use websites and apps that are not HIPAA-regulated or protected by patient-physician privilege, such as period-tracking apps used by millions of women that collect information on the timing of menstruation and sexual activity.

“There are many instances of internet service providers sharing user data with law enforcement, and prosecutors obtaining and using cellphone data in criminal prosecutions,” write Mello and Spector-Bagdady, adding commercially collected data are also frequently sold to or shared with third parties.

“Thus, pregnant persons may unwittingly create incriminating documentation that has scant legal protection and is useful for enforcing abortion restrictions,” they said.

The immediate problem, Mello notes, is in the states that have already banned abortion or passed restrictive laws.

“There could be a problem with states trying to reach outside their borders to prosecute people, but that could well be unconstitutional,” Mello said.

Some states’ laws sweep abortion pills into the definition of illegal abortions, she said, and there are legal obstacles to supplying the pills across state lines.

“There is a lot of energy going into figuring out a workaround right now, but it’s too soon to call,” Mello said.

Recommended Protections

So how can clinicians and health-care facilities protect their patients and themselves?

When counseling patients of childbearing age about reproductive health issues, clinicians should caution their patients about putting too much medical data online and refer them to expert organizations that will help them minimize their digital footprint.

When documenting reproductive health encounters, the authors said, clinicians should ask themselves: “What information needs to be in the medical record to assure safe, good-quality care, buttress our claim for reimbursement, or comply with clear legal directives?” For example, does information about why a patient may have experienced a miscarriage need to be recorded?

Patients and clinicians should be aware that email and texting may be seen by others, so conversations among staff about reproductive health issues may best be conducted by phone or in person.

Finally, if abortion-related patient information is sought by state law enforcement officials, a facility’s attorney should be consulted about asserting physician-patient privilege and determining whether the disclosure is mandated by law.

Michelle Mello

Michelle Mello

Professor of Health Policy, Law
Focuses on issues at the intersection of law, ethics and health policy.
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Michelle Mello writes that the overturning of Roe v. Wade — ending federal protection over a woman's right to an abortion — could also expose her personal health data in court.

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Desi Small-Rodriguez
Desi Small-Rodriguez, PhD, is an Assistant Professor of Sociology and American Indian Studies at the University of California, Los Angeles. As a social demographer, she applies critical quantitative and mixed methods to research at the intersection of race, indigeneity, data, and inequality. An indigenous woman (Northern Cheyenne and Chicana), Small-Rodriguez specializes in survey research in partnership with Indigenous communities and other marginalized populations. She grounds her research in Indigenous studies, sociology of race and ethnicity, political sociology, sociology of knowledge, critical demography, health policy research, and science and technology studies. She directs the Data Warriors Lab, which is an Indigenous social science laboratory that connects researchers, students and Indigenous communities to build data that support "strong self-determined Indigenous futures."

 

You are invited to a Zoom meeting. 

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After registering, you will receive a confirmation email containing information about joining the meeting.

Desi Small-Rodriguez, PhD Assistant Professor, Sociology and American Indian Studies, UCLA
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Cover of the journal Social Indicators Research
This study investigates the strength and significance of the associations of health workforce with multiple health outcomes and COVID-19 excess deaths across countries, using the latest WHO dataset.

Multiple log-linear regression analyses, counterfactual scenarios analyses, and Pearson correlation analyses were performed. The average density of health workforce and the average levels of health outcomes were strongly associated with country income level. A higher density of the health workforce, especially the aggregate density of skilled health workers and density of nursing and midwifery personnel, was significantly associated with better levels of several health outcomes, including maternal mortality ratio, under-five mortality rate, infant mortality rate, and neonatal mortality rate, and was significantly correlated with a lower level of COVID-19 excess deaths per 100K people, though not robust to weighting by population.

The low density of the health workforce, especially in relatively low-income countries, can be a major barrier to improving these health outcomes and achieving health-related Sustainable Development Goals (SDGs); however, improving the density of the health workforce alone is far from enough to achieve these goals. Our study suggests that investment in health workforce should be an integral part of strategies to achieve health-related SDGs, and that achieving non-health SDGs related to poverty alleviation and expansion of female education are complementary to achieving both sets of goals, especially for those low- and middle-income countries. In light of the strains on the health workforce during the current COVID-19 pandemic, more attention should be paid to health workforce to strengthen health system resilience and long-term improvement in health outcomes.

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Karen Eggleston
Jinlin Liu

Encina Hall, 616 Serra Mall, Stanford, CA 94305

 

 

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MPH

Lizzy Constantz serves as the Program Manager for the Stanford Human Trafficking Data Lab. She is a graduate of the Johns Hopkins Bloomberg School of Public Health, where she studied human trafficking and human rights, culminating in a Masters thesis analyzing the correlates of early child marriage in Ethiopia. Prior to her work in public health, Lizzy developed an expertise in translation and clinical research, as well as programs and operations management. As Program Manager, she is eager to use her background and education to advance the lab's initiatives.

Program Manager
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We conducted a cluster-randomized trial to measure the effect of community-level mask distribution and promotion on symptomatic SARS-CoV-2 infections in rural Bangladesh from November 2020 to April 2021 (N = 600 villages, N = 342,183 adults). We cross-randomized mask type (cloth vs. surgical) and promotion strategies at the village and household level. Proper mask-wearing increased from 13.3% in the control group to 42.3% in the intervention arm (adjusted percentage point difference = 0.29 [0.26, 0.31]). The intervention reduced symptomatic seroprevalence (adjusted prevalence ratio (aPR) = 0.91 [0.82, 1.00]), especially among adults 60+ years in villages where surgical masks were distributed (aPR = 0.65 [0.45, 0.85]). Mask distribution and promotion was a scalable and effective method to reduce symptomatic SARS-CoV-2 infections.

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A randomized trial of community-level mask promotion in rural Bangladesh during COVID-19 shows that the intervention increased mask-use and reduced symptomatic SARS-CoV-2 infections.

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Innovations for Poverty Action
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et al
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Noa Ronkin
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As the COVID-19 pandemic remains a crucial global public health threat, pandemic control measures such as lockdowns and mobility restrictions continue to disrupt the provision of health services, leading to reduced healthcare use. Indeed, evidence shows the pandemic has emerged as a particular challenge for people with chronic conditions such as diabetes and hypertension. Yet there is limited data comparing the pandemic’s impact on access to care and the severity of chronic disease symptoms at the population level across Asia.

Now a new collaborative study, published by the Asia Pacific Journal of Public Health, addresses this limitation. The study co-authors, including APARC’s Asia Health Policy Program Director and FSI Senior Fellow Karen Eggleston, offer the first report comparing the impacts of the COVID-19 pandemic and its associated mobility restrictions on people with chronic conditions at different stages of socio-demographic and economic transitions in five Asian regions — India, China, Hong Kong, Korea, and Vietnam.

The findings show that the pandemic has disproportionately disrupted healthcare access and worsened diabetes symptoms among marginalized and rural populations in Asia. Moreover, the pandemic’s broad social and economic impact has adversely affected population health well beyond those directly suffering from COVID-19, with the resulting delayed and foregone care leading to uncertain longer-term effects.


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Unintended Adverse Consequences

Routine screening, risk factor control, and continuity of care for non-communicable diseases are a global challenge. The COVID-19 pandemic has exacerbated the challenge even further. Existing reports show the pandemic has particularly adverse impacts on essential prevention and treatment services for people with chronic conditions. These reductions in health services arose from pandemic-associated factors such as mobility restrictions, lack of public transport, and lack of health workforce.

Eggleston and a group of colleagues set out to provide evidence on how the pandemic has impacted chronic disease care in diverse settings across Asia during COVID-19-related lockdowns. Using standardized questionnaires, the researchers surveyed 5672 participants aged 55.9 to 69.3 years with chronic conditions in India, China, Hong Kong, Korea, and Vietnam. The researchers collected data on participants’ demographic and socio-economic status, comorbidities, access to healthcare, employment status, difficulty in accessing medicines due to financial and nonfinancial (COVID-19 related) reasons, treatment satisfaction, and severity of their chronic condition symptoms.

If no immediate actions are taken to mitigate pandemic impacts, the Asia-Pacific region will struggle to achieve the 2030 Sustainable Development Goal target 3.4 to reduce premature mortality from non-communicable diseases […] and to promote mental health and wellbeing.
Karen Eggleston et al.

The results show that the pandemic’s broad social and economic impact has adversely affected population health well beyond those directly suffering from COVID-19. Study participants with chronic conditions faced significant challenges in managing their symptoms during the pandemic. They experienced a loss of income and difficulties in accessing healthcare or medications, with the resulting delayed and foregone care leading to uncertain longer-term effects. For a nontrivial portion of participants, these factors are associated with the worsening of diabetes symptoms. The threat is twofold among people living in rural populations with limited access, availability, and affordability of healthcare services.

A Global Health Priority

The unintended adverse consequences of the COVID-19 pandemic on chronic disease care may also further aggravate inequality in health outcomes. “If the trend continues and no immediate actions are taken to mitigate pandemic impacts,” Eggleston and her colleagues caution, then “the Asia-Pacific region will struggle to achieve the 2030 Sustainable Development Goal (SDG) target 3.4 to reduce premature mortality from non-communicable diseases by a third relative to 2015 levels and to promote mental health and wellbeing.”

Addressing the pandemic’s unintended negative social and economic impacts on chronic disease care is a global health priority, determine the researchers. They propose several measures to help provide timely care for people with chronic conditions in resource-constrained settings. These include implementing innovations in healthcare delivery models to improve the adoption of healthy lifestyle changes and self-management of chronic disease and mild COVID-19 symptoms, increasing investment in interventions to provide social and economic support to disadvantaged populations, and strengthening primary healthcare infrastructure and support of healthcare providers.

The study was supported in part by funding from Shorenstein APARC’s faculty research award, Stanford King Center for Global Development, and a seed grant from the Stanford Center for Asian Health Research and Education.

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In the first report of its kind comparing the impacts of the pandemic on people with chronic conditions in five Asian regions, researchers including APARC’s Karen Eggleston document how the pandemic’s broad social and economic consequences negatively affected population health well beyond those directly suffering from COVID-19.

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Cover of Issue 34(1) of Asia Pacific Journal of Public Health, January 2022
This study aims to provide evidence on how the COVID-19 pandemic has impacted chronic disease care in diverse settings across Asia. Cross-sectional surveys were conducted to assess the health, social, and economic consequences of the pandemic in India, China, Hong Kong, Korea, and Vietnam using standardized questionnaires.

Overall, 5672 participants with chronic conditions were recruited from 5 countries. The mean age of the participants ranged from 55.9 to 69.3 years. A worsened economic status during the COVID-19 pandemic was reported by 19% to 59% of the study participants. Increased difficulty in accessing care was reported by 8% to 24% of participants, except Vietnam: 1.6%. The worsening of diabetes symptoms was reported by 5.6% to 14.6% of participants, except Vietnam: 3%. In multivariable regression analyses, increasing age, female participants, and worsened economic status were suggestive of increased difficulty in access to care, but these associations mostly did not reach statistical significance. In India and China, rural residence, worsened economic status and self-reported hypertension were statistically significantly associated with increased difficulty in access to care or worsening of diabetes symptoms.

These findings suggest that the pandemic disproportionately affected marginalized and rural populations in Asia, negatively affecting population health beyond those directly suffering from COVID-19.

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Asia Pacific Journal of Public Health
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Karen Eggleston
Kavita Singh
Yiqian Xin
Yuyin Xiao
Jianchao Quan
Daejung Kim
Thi-Phuong-Lan Nguyen
Dimple Kondal
Xinyi Yan
Guohong Li
Carmen S. Ng
Hyolim Kang
Hoang Minh Nam
Sailesh Mohan
Lijing L. Yan
Chenshu Shi
Jiayin Chen
Hoa Thi Hong Hanh
Viswanathan Mohan
Sandra Kong
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Jason Wang and his team working on a project to prevent preterm births received a $150,000 grant from the Richard King Mellon Foundation to complete their randomized control trial testing a digital app that tries to prevent recurrent preterm births.

PretermConnect uses a digital strategy for prevention and follow-up of preterm births in Allegheny County, PA, to optimize the health and well-being of mothers and children. Instead of the standard care, Stanford Health Policy is collaborating with the University of Pittsburg Medical Center (UPMC) in the randomized control trial with women who have delivered a preterm baby. The women are invited to participate and then randomly put into the group that uses the digital or a control group who received paper-based discharge packets with supplemental health education on postpartum care.

“This grant allows us to continue recruiting participants through UPMC and expanding PretermConnect’s features to enhance user engagement, including a function to search for resources by geography and topic,” said Wang, MD, a professor of pediatrics and health policy. “We also intend to scale the project with additional content on high-risk infant follow-up and preterm-specific developmental care guidelines, additional engagement features — and eventually support for different languages, starting with Spanish.”

In the long term, we hope to see an overall decrease in infant morbidity and mortality, by way of reducing preterm births.
Jason Wang
Professor of Pediatrics and Health Policy

The women in the digital app group receive in-app health education and resources to improve well-being for mothers and their infants. The app includes a social interaction feature designed to foster social connections and promote self-care. They have enrolled 30 women during the pilot phase and 15 mother-infant dyads in the randomized control trial, with a goal of reaching 250.

“The digital approach also allows us to administer brief surveys and gather information on dynamic social determinants of health more frequently than can be done through traditional means,” said Shilpa Jani, an SHP project manager. She said social determinants of health — such as persistent housing instability, food insecurity and concerns of personal safety — contribute to chronic stress and health issues as well as an increased risk of pregnancy and birth complications.

“Adverse effects of social determinants of health along with health complications of preterm deliveries may exacerbate morbidities for the mother and child,” Jani said, adding that preterm-related causes of death accounted for two-thirds of infant deaths in 2019 in the United States.

Wang and Jani said the immediate project goals include increasing health education for preterm baby care, improving postpartum maternal health, and encouraging usage of local resources in Allegheny County. They eventually hope to see reductions in risk for subsequent preterm delivery and infant mortality and postpartum depression, as well as increases in mother-infant bonding and larger proportions of breastmilk feeding.

Jason Wang Stanford Health Policy

Jason Wang

Professor of Pediatrics and Health Policy
Develops tools for assessing and improving the quality of health care
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Shilpa Jani

Shilpa Jani

Research Data Analyst
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SHP researchers awarded grant to continue their clinical trial testing out a digital app they hope will prevent preterm births.

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